Let's brighten the 🌎 as we raise awareness for CHD and spread the love of Down syndrome. 🐝SBB 7/8/16-2/21/17🐝
Let's brighten the 🌎 as we raise awareness for CHD and spread the love of Down syndrome. 🐝SBB 7/8/16-2/21/17🐝
So proud of this day and our efforts and so very thankful for this group of supportive friends 💛🐝#brightforbrett #chdresearch #thebrettboyerfoundation #chdawareness #theluckyfew
What is Brett’s Barn and who can visit?
This picture. For the longest time, I couldn’t bear to look at it. There are so many feelings in this picture. Pride, fear, love, exhaustion, did I mention undeniable love? But this is the reality of congenital heart disease. This is after Brett fought to come off the ventilator and as her mitral valve struggled, she grew too tired to continue without it. I have stared at this picture in the past two years wondering what she was feeling. Wondering how I could have made it better. But all I know to do is try to make it better for those in the future. Please join us by supporting CHD research💛🐝 link in bio #1in100 #chdawareness #heartwarriors #theluckyfew #avsd #avcanaldefect #chdresearch #brightforbrett #queenbee #thebrettboyerfoundation
Our mission is to raise awareness for Congenital Heart Disease and fund research to advance treatment options. It is also our mission to spread the love and awareness that Brett filled us with for the wonderful, capable people living with Down Syndrome.
This is Kara. I’ve been following her journey through her mom for a while now and Amber says it perfectly about the fears that come with a Down syndrome diagnosis... and how beautiful the reality can be. Give her a follow to brighten your day! @baby_lemonade_ #Repost @baby_lemonade_ with @get_repost ・・・ When we found out that our baby had Down syndrome, I had nothing but worries filtering through my head- What are people going to say? Will she have friends? Can I handle this? Is she going to be smart? Pretty? Independent?⠀ ⠀ I should have been worrying about other things- How are we going to have time for ALL her friends? Can my heart handle this much love? Will I win the next argument with my clever little toddler? How am I going to survive when she moves out of the house someday? How did we create something so beautiful?⠀ ⠀ I hate to admit when I’m wrong, but damn, wasn’t I?⠀ ⠀ ⠀ ⠀ ⠀ ⠀ #babylemonade #downsyndromelove #theluckyfew #extrachromosomeextracute #downsyndrome #shouttheirworth #findyourtribe #differentnotless #differentisbeautiful #lifeisbetterwithyou #downsyndromeblogger #hindsight #toddlersofig #toddlerhood #toddler #twoyearsold #notsoterribletwos #busytoddler #whatalife #toddlerfashion #letthembelittle #childhoodunplugged
Learn more about The Brett Boyer Foundation and the importance of CHD research. #brightforbrett
Happy world Down syndrome day! I hope people notice that when I talk about Brett having Down syndrome that I light up.it was one of my favorite things about her. Brett had Down syndrome, she didn’t suffer from it. We will celebrate her and her third copy of the 21st chromosome every.day. Today we biked for Brett at the beach and I pictured her smiling and celebrating the day with me. #theluckyfew indeed.
Brett’s baby brother💛🐝
🚲💛🐝#Repost @steelathletes with @get_repost ・・・ 🐝B I K E F O R B R E T T 🐝 Sign Up is LIVE!!!! Link is in bio to reserve your bike! Did you know that March 21st (3/21 ) is World Down Syndrome Day!?! Why March 21st? People with Down Syndrome have 3 copies of the 21st chromosome. The Brett Boyer Foundation’s goal is to raise awareness and support our friends rocking that extra chromosome! In celebration of World Down Syndrome Day, we are celebrating the entire month of March, with an epic kickoff at CycleBar Franklin! Join us, Saturday March 2nd at 12pm as we Bike for Brett! 100% of the Proceeds go to the Brett Boyer Foundation!!! SIGN UP Is LIVE! Go to franklin.cyclebar.com to sign up! @brightforbrett @steelathletes (📸: @silver_highway )
Little Friday humor for you😂💛🐝 thanks for sharing @websterkatie
It’s happening! Get ready for our second annual #bikeforbrett ! The month of March, it’s on! 🚲 🐝 more details to come soon!
This is the harsh reality of CHD. This is why we fight... for better imaging, more treatment options, more time happy at home. Inspired by our brave little girl who was so full of purpose. Inspired by the warriors who continue to fight and for those who are to come. 💪🏻💛🐝 join us! Donate now by clicking the link in our bio.
Happy CHD awareness week!! 🐝🐝🐝💛💛💛
#Repost @w.o.b.h with @get_repost ・・・ Why it happens In most cases, no obvious cause of congenital heart disease is identified. However, some things are known to increase the risk of the condition, including: -Down's syndrome – a genetic disorder that affects a baby's normal physical development and causes learning difficulties -the mother smoking or drinking alcohol during pregnancy, including statins and some acne medicines the mother taking certain types of medicine during pregnancy, including statins and some acne medicines the mother smoking or drinking alcohol during pregnancy the mother having poorly controlled type 1 diabetes or type 2 diabetes -other chromosome defects, where genes may be altered from normal and can be inherited (run in the family ) Many cases of congenital heart disease are diagnosed before a baby is born during an ultrasound scan in pregnancy. However, it's not always possible to detect congenital heart defects in this way. Signs and symptoms Congenital heart disease can have a number of symptoms, particularly in babies and children, including: -rapid heartbeat -swelling of the legs, tummy or around the eyes swelling of the legs, tummy or around the eyes extreme tiredness and fatigue -tiredness and rapid breathing when a baby is feeding tiredness and rapid breathing when a baby is feeding These problems are sometimes noticeable soon after birth, although mild defects may not cause any problems until later in life. Read more about the symptoms of congenital heart disease and diagnosing congenital heart disease. source: https://www.nhs.uk/conditions/congenital-heart-disease/ #chd #chdawareness #1in100 #worldofbrokenhearts
Today, we wear red to celebrate the first day of heart month and spread some #chdawareness ♥️♥️♥️#heartmonth #1in100 #brightforbrett
Getting to support the department who tirelessly cared for our girl is an overwhelming feeling. Our hearts desire is to give the warriors still fighting the beast that is CHD more options for a long and happy life AT HOME with the families who love them. Dr. Bret Mettler and his team will always have our support in the miracles he performs. #brighforbrett #chd #1in100 #ds #chdawareness
Messy house, toys and snuggles galore, strong coffee, MiMi and Wells. It’s a dang good morning 🐝🐝 #brettsworkerbees
Sleepy little Friday here in Nashville. Hope you all have a great weekend! 👑🐝
Merry Christmas and Happy Holidays💚❤️🎄🐝 thebrettboyerfoundation.org
A sweet, sleeping princess from a little over 2 years ago. Seems like just yesterday yet like forever ago at the same time. I’m so thankful to see Brett in her baby brother. Her innocence is really beaming in this pic. Happy Saturday and be #brightforbrett 👑🐝 #theluckyfew #chdawareness #1in100
Testing the Christmas Story flag pole theory🤷🏼♀️🤷🏼♀️ 👅 “say kids, wouldn’t happen to have a cup of warm water would ya?”- Harry Dunn
We love @blackberryfarm !!#Repost @blackberryfarm with @get_repost ・・・ We're celebrating a special collaboration between @makeagreatday and @brightforbrett ! These foundations honor incredible people who lived every day with positivity and light. This limited release is available now at the link in bio. #makeagreatday #brightforbrett #makeitgreat
Sweet, happy Brett💛🐝#nothingdownaboutit
My Christmas 🎄 angel
Happy Saturday! Bee 🐝 the light you want to see in the world today💛
Brett’s sleepy baby brother💙💛
#Repost @gigisplayhousenashville with @get_repost ・・・ DAY 28: People often wonder how having a child with Down syndrome will affect the lives of their siblings. The research is clear: Love doesn't count chromosomes. The VAST majority of brothers and sisters describe their relationship with their sibling with Down syndrome as positive and enriching. In a study by Skotko, Levine, and Goldstein (2011 ), 96% of brothers and sisters indicated that they had affection for their sibling and 94% expressed that they were proud of their sibling with Down syndrome. Among older siblings, 88% felt that they were a BETTER PERSON because of their sibling with Down syndrome and more than 90% plan to remain involved in their sibling’s life throughout adulthood (source: bit.ly/DsSibStudy ). At @gigisplayhousenashville , we love siblings and welcome them as active participants in our programs! Meet our friends and program participants, Gabe and Ella. Gabe’s mom, Valerie, shares: “For Gabe, every teacher conference we have had starts with: ‘Oh my goodness! He sure loves his sister! He talks about her ALL. THE. TIME!’ [Here is an] essay he wrote last year in 2nd grade: ‘The best gift I ever got was Ella because I love her a lot. I love Ella more than anyone else in the world. I love her so much; I hug her every day. Ella loves me too…’” 💙💛 #GiGisNSHDSAM2018
Wells is excited to be on the way to the Nashville Buddy Walk to honor his big sister and celebrate all her friends! 💙💛 #theluckyfew #nothingdownaboutit #nbw18
Please read this tremendous story!! All brought together by the wonder of that 47th chromosome. I’m telling you guys, it’s magic! 🌟 💫 💙💛🐝 #Repost @gigisplayhousenashville with @get_repost ・・・ DAY 23: Down syndrome will change your life…and it might even save it. 💙💛 These two GiGi’s families both have young daughters, Lily and Joy, who have Down syndrome. They first met at @dsamt ’s baby shower and we also love seeing them at programs and events at @gigisplayhousenashville Up until today, Lily’s dad, Vong, had been in end stage renal failure for three years. He had numerous doctor’s appointments and had to go to dialysis three times a week…until yesterday. When Lily’s mom, Linda, initially met Joy’s mom, Michelle, they instantly connected as friends. Linda shared about her husband’s illness and need for a kidney transplant. On her own, Michelle went to get tested to see if she could be an organ donor…and it turned out that she was a perfect match for Vong. This morning, Michelle donated her kidney and Vong received the incredible gift of life. Please join us in keeping both families in your thoughts and prayers as Michelle and Vong begin their recovery. We are so thankful for and amazed by this community! ❤️ #GiGisNSHDSAM2018 #ShareaSpare #OrganDonation #DonateLife #LivingDonor
#brightforbrett 💛💛🐝 still trying to compose ourselves over here after a very perfect day raising funds for kids with congenital heart disease and Down syndrome... all while celebrating our baby girl! Hearing people say her name and hear her story just fills my heart with so much pride and joy. #nothingdownaboutit #theluckyfew #1in100 #chdawareness
Come, Thou Fount of every blessing Tune my heart to sing Thy grace Streams of mercy, never ceasing Call for songs of loudest praise Teach me some melodious sonnet Sung by flaming tongues above Praise the mount, I'm fixed upon it Mount of Thy redeeming love
It’s all for you, Bretty Boo🐝🐝🐝
How precious is miss Teagan?? Just wanted to share her pretty face and some words from her mama! Happy Down syndrome awareness month!💛💙💛💙 #Repost @alex_mcnally with @get_repost ・・・ Day 13 Kids with Down Syndrome usually have speech delays. Parents are encouraged to sign with them. It has been a long road of signing and teaching her one sign at a time. . . . Teagan is funny because when I taught her please i paired it with “more” which is usually food related. 🤣 so of course she picked that up in literally one day. On the other hand I’ve been signing book for two months and she still isn’t reciprocating. . . . Teaching Teagan signs helps with limiting her frustrations with not being able to communicate her needs to me. She currently knows; eat, more, please, all done, help, milk, and music! We are really working hard on adding to the list! Especially now that she is getting older the pressure is on!